Incidence of ALS in all 50 states in the United States, data from the National ALS Registry, 2012-2019

Key points

Reports on the incidence of ALS in all 50 states

Image of front two pages of a scientific paper

Affiliates

Paul Mehta1, Jaime Raymond1, Theresa Nair1, Moon Han1, Reshma Punjani1, Theodore Larson1, Jasmine Berry1, Suraya Mohidul2, Song Xue2, D Kevin Horton1

  1. Office of Innovation and Analytics, Agency for Toxic Substances and Disease Registry/Centers for Disease Control and Prevention, Atlanta, GA, USA and.
  2. Hite Consulting, Inc, Atlanta, GA, USA.

Journal

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Summary

This is the first National ALS Registry paper on the incidence of ALS in each of the 50 US states. Incidence is described as the number of new cases onset during the reported period. Researchers used data between 2012 and 2019 from existing national administrative databases (Medicare, Veterans Health Administration, and Veterans Benefits Administration) and the Registry web portal.

Incidence rates for 2012 to 2019 ranged from 0.65 per 100,000 persons (Alaska) to 2.25 per 100,000 persons (Vermont), with an overall incidence of 1.44 per 100,000 persons in the United States. New England and the upper Midwest regions had higher incidence rates than national rates.

The Registry is working to understand the causes of state and regional ALS prevalence differences in by continuing efforts to keep data current.

Link to Paper

Read the full paper here!

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Content Source:
Agency for Toxic Substances and Disease Registry